Going
Gently Into the Night
A surgeon learns the lesson formulated by
Cicely Saunders, the founder of hospice care: ‘Last days need not be lost
days.’
By Paul McHugh in the
Wall Street Journal
Of
physicians, surgeons must be the most aware of how the limits of a mortal body
restrict what they can do. In “Being Mortal” surgeon Atul Gawande describes
learning how to extend those limits—and discovering how to respect them, in the
case of terminal illness, in ways that neither he nor his patients anticipated.
The
history of modern surgery began at the point of the scalpel, dealing with such
straightforward matters as reducing blood loss or tissue damage at the surgical
site. But the profession truly came of age when it identified as a surgical
concern problems outside the site itself. In the mid-20th century, at Brigham
and Women’s Hospital in Boston, Francis D. Moore, the hospital’s surgeon in
chief, took a giant step forward by drawing attention to the body’s broad
responses to surgery.
Moore
documented a concatenation of alarm reactions to a surgical operation, alarms
that took the form of post-operative metabolic and endocrine surges that needed
vigorous countermeasures to keep them from overwhelming a patient with vascular
collapse or multiple organ failure. Moore’s ability to identify and prescribe
the right countermeasures increased patients’ chances of survival. It also made
ever more radical surgical cures possible, bringing a vast range of illnesses
and even organ transplantation under surgical control. From Moore’s
contributions have emerged the full panoply of services that now sustain
surgical achievements: intensive-care units, artificial kidneys, respirators,
feeding and intravenous support teams.
Moore—called
“Franny” by his friends—was a splendid Chicagoan who triumphed in academic
Boston. He was passionate, optimistic, energetic, warm. Toward the end of his
career, though, he began to wonder whether, with the advances he had helped
make possible, doctors and patients had come to seek too much when facing
terminal illness. He thought the surgical adage “a chance to cut is a chance to
cure” was being pushed so far—with prolonged, futile efforts—that the lives of
many patients with advanced disease had become unendurable. In a fashion
seemingly uncharacteristic for this usually positive-thinking surgeon, Moore
became a vocal champion of euthanasia.
In
“Being Mortal,” Dr. Gawande does not discuss this historical context. But the
author, a first-class academic surgeon at the very Boston hospital where Moore
practiced decades ago, argues for the importance of palliative care for the
terminally ill—especially the palliative services organized in a systematic
fashion by hospice groups. He ardently believes that such services and
treatments fall within the scope of the modern surgeon’s concern. Dr. Gawande
can “cut and cure” with the best of them, but he has also come to “care and
serve,” as he shows in a series of stories about patients who, in the course of
his providing their surgical treatments, required palliative services.
One
of Dr. Gawande’s most touching examples centers on the final weeks of his
daughter’s piano teacher, who was suffering from terminal, untreatable
leukemia. Dr. Gawande persuaded her to leave his hospital and try, with his
support, hospice home care rather than passively await the future or seek
“death with dignity.” With a combination of pain management and thoughtful
physical assistance she regained energy and found the zeal, in the six weeks
that followed, to give private lessons again. She also enjoyed a recital
organized by her pupils, past and present, wherein they could all express their
gratitude to her. Three days later she slipped into coma and passed away
peacefully. With Dr. Gawande’s help this patient demonstrated what Cicely
Saunders, the physician-nurse founder of hospice care in the 1950s, repeatedly
asserted: “Last days need not be lost days.”
Dr.
Gawande’s book is not of the kind that some doctors write, reminding us how
grim the fact of death can be. Rather, Dr. Gawande shows how patients in the
terminal phase of their illness can maintain important qualities of life with
medico-surgical assistance. “Being Mortal” doesn’t gloss over what awaits us
all, but it fixes our attention on the ways in which a patient’s wishes might
be fulfilled—such as the wish for a peaceful, clear-headed valediction among
loved ones. As Dr. Gawande chronicles, this effort requires thought and
determination on the part of the doctor, the patient and members of the family.
He
ends the book by describing how, in the process of striving to help his own
physician-father during his terminal illness from a spinal malignancy, he still
had much to learn. The kindness, skill, knowledge and refreshing candor of a
nurse-practitioner from the Appalachian Community Hospice of Athens, Ohio,
“blew me away,” he says. She managed Mr. Gawande’s father’s medications in a
more systematic fashion than he could alone, and she helped him rise from bed
and walk more securely. By smoothing out his pain relief she ended the periods
of grogginess that had deranged his mind, and she brought about some recovery
of his physical strength and his capacity to join in with his children and
wife.
By
making a forceful case for palliative care and hospice services—with their
capacity to sustain life’s quality out to the end—“Being Mortal” provides a
response to the presumptions of despair that fuel the euthanasia movement. One
can’t help thinking that Franny Moore, for
all his gifts, was not optimistic enough about all that medicine could
accomplish. His followers have since extended the powers of the surgeon by
making the tools that Moore gave them not the implements of a torturous process
but rather the means of bringing life to a meaningful close.
Dr. McHugh, a professor of psychiatry at Johns Hopkins
University, is the author of “Try to Remember: Psychiatry’s Clash Over Meaning,
Memory, and Mind.”
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